Monday, August 18, 2014




"I Never Told You"

I miss those blue eyes
How you kiss me at night
I miss the way we sleep
Like there's no sunrise
Like the taste of your smile
I miss the way we breathe

But I never told you
What I should have said
No, I never told you
I just held it in

And now I miss everything about you
I can't believe it, I still want you
After all the things we've been through
I miss everything about you
Without you, whoa...

I see your blue eyes
Every time I close mine
You make it hard to see
Where I belong to
When I'm not around you
It's like I'm not with me

But I never told you
What I should have said
No, I never told you
I just held it in

And now I miss everything about you (still you're gone)
I can't believe it, I still want you (And I'm lovin' you, I never should have walked away)
After all the things we've been through (I know it's never gonna come again)
I miss everything about you
Without you, whoa...

But I never told you
What I should have said
No I never told you
I just held it in

And now I miss everything about you (still you're gone)
Can't believe it, I still want you (And I'm lovin' you, I never should have walked away)
After all the things we've been through (I know it’s never gonna come again)
I miss everything about you
Without you, whoa, no, no...

Friday, August 15, 2014

Handbook





Recently, I was given a "talking to" by someone who did not agree with my daughter knowing about Trey.  This came from someone who has not a child but has experienced loved ones losing a child so that makes them an expert.  It started with me sharing that Lorelei asked about a dog who had recently passed away and I told her that the dog was playing with Trey in Heaven.  She was upset about the pictures we have of him in the house.  One of the picture collages was taken down when our bedroom was painted and has not been put up since.  My favorite picture of him is high on our piano and she can not see it.  The only other picture is the of her looking at his picture as a baby.  She expressed her extreme concern for our daughter.

I was really upset by the conversation which included the term "dead baby" and burdening our daughter.  There was also a mention of my need to seek professional help and that I have not accepted the fact that Trey is dead.  I was told that talking to Trey is unhealthy and that our daughter should not be "burdened" by our grief.

To this I thanked her for sharing but said that my husband I will decide what is right for our daughter.  Lorelei asked about a picture we have on our wall of her as a baby looking at his picture.  She wanted to know who the baby was and we told her.  Did we go into details? No!  She understands that Trey is helping and playing with the Angels and that he watches over her.  When a balloon gets let go of, she tells Trey to catch it.  She is no way burdened by any grief and has never once got upset over him.  She mentions him every now and again then goes about her way.  Our lives do not revolve around our grief.  We keep on living holding in our hearts because that is what we have to do

The way my husband and I see it is just because he is gone, that does not mean he is not a part of out family.  We love both of our children dearly and we choose to include him in our lives.  Do we obsess over it? No!.  We joke about little weird things that happen in the house that have no explanation like toys turning on by themselves and we blame Trey.  Most of our interactions with Trey are light hearted for the occasional break down which is bound to happen in a case like this.

My advice for those who have not lost a child is, if you have the handbook on grieving through child loss, hand it over.  You don't have to like what we are doing but respect our decisions.  She is no way in danger or emotional peril so please back off.  We would stop talking about him if we sensed it was upsetting her.  She will have more questions about him and we will handle those when they come in the same manner.

Friday, April 18, 2014

You'll Be In My Heart





"You'll Be In My Heart"

Come stop your crying
It will be alright
Just take my hand
Hold it tight

I will protect you
From all around you
I will be here
Don't you cry

For one so small,
You seem so strong
My arms will hold you,
Keep you safe and warm
This bond between us
Can't be broken
I will be here
Don't you cry

'Cause you'll be in my heart
Yes, you'll be in my heart
From this day on
Now and forever more

You'll be in my heart
No matter what they say
You'll be here in my heart, always

Why can't they understand the way we feel?
They just don't trust what they can't explain
I know we're different but deep inside us
We're not that different at all

And you'll be in my heart
Yes, you'll be in my heart
From this day on
Now and forever more

Don't listen to them
'Cause what do they know (what do they know)?
We need each other
To have, to hold.
They'll see in time
I know

When destiny calls you
You must be strong (you gotta be strong)
I may not be with you
But you've got to hold on
They'll see in time
I know
We'll show them together

'Cause you'll be in my heart
Yes, you'll be in my heart
[another version says: "Believe me, you'll be in my heart"]
I'll be there from this day on,
Now and forever more

Oh, you'll be in my heart (you'll be here in my heart)
No matter what they say (I'll be with you)
You'll be here in my heart (I'll be there), always
Always
I'll be with you
I'll be there for you always
Always and always
Just look over your shoulder
Just look over your shoulder
Just look over your shoulder
I'll be there always.

Tuesday, April 8, 2014

After Days

Every year is hard but this year seems to be the hardest.
Why is it when it's now we've come the farthest.
After you passes another child was within hope.
The hope of a healthy child helped us to cope.
Our healthy daughter is a blessing to treasure.
Even though our grief would never lose any measure.
The hope that was there back then is depleted.
This year the pain I feel is greater now that I have been cheated.
The third child I wanted is not in "the plan".
So these memorial days have passed, now I do what I can.
I struggle to find the hope I felt after you passed.
To have the family I've always dreamt of is all in the past.
Your Daddy can't bear to go through all of it again.
To live through of it brings the memories back from within.
My dream of more life takes it's place in the back seat.
Another loss, another hope, another grief in which to retreat.
The days past the memories should be bring me the same peace
As when we gave you health, the most selfish release.
Instead I feel robbed again, as if losing you wasn't enough.
The mourning the child that could've been has been extremely rough.
So I ask you grant me patience for what might be.
For the future that I fail to see.
I need peace in my heart that my dreams will be fulfilled
In whatever way my fate has it sealed.
These days after will be haunted by the dreams that I feel.
Change my thoughts and my focus on my blessed present.
And the purpose for which my life has been meant.
I can not live in the life of what could've.
But enjoy all the blessings of the ones that I love.
In hopes that one day my dreams will be fulfilled
In the manner in which time will me until
We meet in Heaven and I understand what it was all about.
My life and my love with will be my blessed account.

Tuesday, April 1, 2014

Ship Of Fools

Today is April Fools Day.  I have always enjoyed an innocent prank on this day until I experienced a betrayal.

5 years ago today we were overjoyed from the phone call we got that there was a bed at the local children's hospital for our son.

Little did we know the shit storm we were in for.

Trey almost had the opportunity to ride in a helicopter but he ended up in an ambulance, with me in the passenger seat wishing I were back in the cab with him.  I witnessed cars not pulling aside for the sirens and the driver driving over curbs to get him there.  John drove by himself, opting to let me "ride with him" and when we got there, the nurse in the ambulance said that he had "an attitude problem" on the way there which meant he  had to be stabilized.  Maybe that is the reason why they didn't allow me back there.   I said to her, "Little asshole!", and she hugged me  laughingly and said, "Don't lose that sense of humor in this situation."

When we got to the children's hospital, I was desperate to find my husband which was a difficult feat considering the understandable res tape you have to get through in any children's hospital.

When I did find him, we could not see Trey because he was getting "settled in" which  means stabilization and evaluation.  When we finally could see him it was fairly short, then the doctors whisked us away for a chat.  That is when our bubbles burst, the day that should've been a celebration and hope for our son's health fell to pieces.

"We have a feeling you haven't been told the whole story."

The Dean of Medicine of the NICU nodded his head.

Our hearts sank.

My mind fogged.

We had been fooled on the day we finally had hope.

To this day I have to ask my husband to translate what the doctors said even though I know what I know now.  He had to explain it over and over because he is left brained and he gets it.

My heart did not get it and refused to get it.

My brain knew.

But despite our hearts feeling and our brains knowing, he still lied to us.  Trey was dying all along.

I wish this was an April Fools joke...I truly wish

Sunday, March 30, 2014

My Only Regret

I don't regret bringing my son into the world.  I don't regret anything about him...save one.

I wish I would've spent more time with him.  He was so fragile that the staff at the hospital had to get him back to homeostasis when we left due to the exposure of stimulus he received from our visits.  This worried us so we limited our time with him so that he would rest and get better, the way we were made to believe that he would.

I ached for him so much when we were apart yet felt sorrow at the sight of his fragile body.  I loved, and still love, him dearly.  I longed for the time when we could spend time with him when he was on the mend but at that time he needed his strength, how ever little there was of it.

It makes me feel like a selfish, awful mother, a woman to focused on the hope of a healthy future for him only to realize that that time was fleeting.  I should have cherished the time we had with him no matter what was to occur.  He needed me and I was not there.

We were fooled in regards to his health yet my presence should have been there to comfort him and at least see him through the hard days.

I cannot fault my husband, as he said, "My place is with you."  It killed him to see his son in that state too, but his tenderness towards Trey showed his love.

Hind sight is 20/20 but the most painful reminder to me of the time I squandered.  I might have been able to bear being there when he passed had I spent more time with him, addicted to holding him in my arms.  I could not stomach it.  I am a coward.

It haunts my heart, especially at this time of year.  I imagine how it  must have looked at the NICU in the hospital he was born in, unless the nurses knew too.  I pray they understood that we wanted him to be in the best of health for his transfer.  He became slightly unstable during our visits, not so much as he was in danger, just his excitement for us to be there.  I venture to guess how he would've gradually calmed and the reactions he was having would've been less severe if I had spent more time with him.  I will never know.  I never gave it a chance.  I never gave him a chance.

How was I to know?

Still, he was my child and he needed me and I was not there.  I should've  been there to calm him in his excitement and to encourage him to rest.  I was not there to do that.

Was it merely my heart refusing t accept the inevitable?  That is of no consequence, I should have been there for whatever time I could, to take advantage of the short time I had with my son, even if we were led to believe he was on the mend.

I know he understands and has no need to forgive.

I know he knows that I will never forgive myself for my selfishness, though he wishes I would.

I will never forgive myself, it is unacceptable for me as a mother.  I failed him when he needed me the most.  I will forever be ashamed of this.

That time was precious, I squandered it.

I am so sorry son.  Trey, I can't take it back, though I wish I could.  I can't give it to you to hold and keep away from my heart.  You have always had too much on your tiny shoulders.

I hold it like a talisman, a scarlet letter, to remind me how precious time is, and to never take it for granted again.

Still, this is my one regret and I will never forget it or forgive it.

Again, I am sorry my sweet son.

Saturday, March 29, 2014

Touching Tribute

grave

A grieving mom’s thoughtful gesture for her toddler is prompting tears and an outpouring of support from parents who have lost a child. Ashlee Hammac, who lives in Lake City, Fla., decided to add a sandbox to the grave site of her baby boy so that her older son, Tucker, would be more comfortable visiting the resting place.

“I wanted him to have a happy memory with his brother and not the memory of his mama crying for days,” Hammac, 24, told TODAY Moms. “Since we've had that out there, he’ll actually ask sometimes to go and play with baby Ryan… He calls that baby Ryan’s house.”
Ryan was born last October, one day after Hammac’s birthday.

When he arrived, Ryan didn't cry and he wasn't breathing. Doctors told Hammac her placenta had ruptured and a team of nurses whisked the baby away before she got a chance to see what he looked like.

Doctors finally got Ryan's heart to beat, but the little boy was suffering from severe hypoxic ischemic encephalopathy (HIE), a condition in which the brain does not receive enough oxygen. Ryan had no brain activity recorded at any time after he was born, Hammac said. He died five days later.

Hammac, who is a single mom, has been visiting Ryan’s grave every day, bringing 3-year-old Tucker along on days when there was no one else to watch him. She noticed the boy would often want to play on top of the grave and that’s when she got the idea to add the unusual feature.  “He has a sandbox at home and absolutely loves it,” Hammac said. “I think it helps him because he doesn’t get so upset talking about him when he can go out there.”

She posted a photo of Tucker visiting Ryan’s resting place on her Facebook page to show her family. Her mom then allowed a support group to post the picture and the response was overwhelming. Almost 50,000 people have shared the photo on Facebook and 175,000 have liked it.

Hammac had mixed emotions at first about the image becoming so public, but after getting lots of support for her decision and her charity, which raises awareness of HIE, the photo “has felt like a blessing,” she said.  While the photo may strike some as odd, it actually shows something very healthy, said Robin F. Goodman, a psychologist specializing in bereavement issues, She praised Hammac for being open and honest about her baby’s passing and for acclimating her older son to the idea of life and death.  


Grief and healing: Mom adds sandbox to baby's grave so son can 'play' with brother


It’s not a taboo subject in this family,” said Goodman, the executive director of A Caring Hand, The Billy Esposito Foundation in New York, which helps kids and families cope with death.  “You don’t have to hide when something sad happens.”

Young children like Tucker don’t fully understand death and are reacting to the environment around them and the emotions of their parents, Goodman said. It’s not until age 8 or 9 that kids grasp the concept of death.
They also grieve and mourn in their own ways. A toddler, upset that something is different, may regress and have bathroom accidents or tantrums, Goodman said. School-age kids may feel sad, angry, lonely, and be worried the death is their fault or feel scared that somebody else will die. Teens may try hard not to show their feelings, become more isolated or act out with drugs or alcohol. 

There are some basic steps parents can take to help kids through grief.  “You want to keep the routine and structure as normal as possible, because it helps give them a sense of security and comfort and stability,” Goodman said.  “Make sure you give them outlets for expressing their feelings… (and) make sure you’re talking with them about what’s going on.”

For more resources about helping kids cope with grief, visit The National Child Traumatic Stress Network.

http://www.today.com/moms/grief-healing-mom-adds-sandbox-babys-grave-so-son-can-2D79381429